Detectar la MPS I al nacer puede cambiar el futuro de un niño.
0:48
Detectar la MPS I al nacer puede cambiar el futuro de un niño.
114 views1 month ago
YouTubeMPS Lisosomales España
Family's Journey with Rare Disease, MPS1 Hurler Syndrome Explained
0:35
Family's Journey with Rare Disease, MPS1 Hurler Syndrome Explained
975 views7 months ago
YouTubeThe Ladd Family
Trasplante MPS 1: Miedos
0:47
Trasplante MPS 1: Miedos
162 views2 months ago
YouTubeMPS Lisosomales España
Fighting for My Child's Life... MPS1 Treatment Journey | The Kennedy Ladd Foundation, Inc.
1:26
Fighting for My Child's Life... MPS1 Treatment Journey | The Kennedy Ladd Foundation, Inc.
13K views5 months ago
FacebookThe Kennedy Ladd Foundation, Inc.
MPS1 is a rare genetic disorder that effects every aspect of the body. We need a cure for children like Finley. Follow us to learn more of her story! 💜 | The Kennedy Ladd Foundation, Inc.
0:08
MPS1 is a rare genetic disorder that effects every aspect of the body. We need a cure for children like Finley. Follow us to learn more of her story! 💜 | The Kennedy Ladd Foundation, Inc.
27.5K viewsJun 10, 2025
FacebookThe Kennedy Ladd Foundation, Inc.
Revolutionary Gene Therapy Cures Rare Disease
1:14
Revolutionary Gene Therapy Cures Rare Disease
1.1K views4 months ago
YouTubeLongevity Science News
Ethan’s story, in his own words 💛 After being born with a rare generic condition called MPS1, Ethan has faced many challenges in his life. He received help from BBC Children in Need and now wants to pay it forward as part of this year’s Challenge Squad 💪 Ethan will be performing a musical number alongside the cast of COME ALIVE, inspired by ‘The Greatest Showman’, on the night of Children in Need. But first, one of his favourite bands, Fisherman's Friends, invited him to share his story in fro
1:30
Ethan’s story, in his own words 💛 After being born with a rare generic condition called MPS1, Ethan has faced many challenges in his life. He received help from BBC Children in Need and now wants to pay it forward as part of this year’s Challenge Squad 💪 Ethan will be performing a musical number alongside the cast of COME ALIVE, inspired by ‘The Greatest Showman’, on the night of Children in Need. But first, one of his favourite bands, Fisherman's Friends, invited him to share his story in fro
17.4K viewsNov 6, 2024
FacebookThe One Show
0:30
All Nix Kills in MPS1 #minecraft #shorts
168 views2 months ago
YouTubeMinecraftPartyShowdown
0:21
A little practice with the new sticks #mizuno MPS1
4 views2 months ago
YouTubeBrian McGrew Coaching
2:01
At six months old, Ethan from The One Show's Challenge Squad was diagnosed with MPS1, a rare condition that affects his growth, bones, hearing and eyesight. He was introduced to UCAN, a BBC Children in Need supported creative arts charity for visually impaired children and young people. The therapy and mentorship provided by UCAN helped Ethan come to terms with the health challenges he faces and begin to look forward and to embrace life again. You can donate and Make Life Lighter for children at
6K viewsNov 15, 2024
FacebookBBC Children in Need
0:11
Kennedy has a rare genetic disorder called MPS1, Hurler Syndrome. This rare disease has an effect on every aspect of the body and there is no cure. She has had to undergo many surgeries to fight these effects including double hip, double knee, and double ankle surgery last November. She is still learning how to walk after such a large procedure. Children like Kennedy need the hope of a cure. We are on a mission to raise awareness and fund a cure. If you are an MPS family, welcome to our commUNIT
81.7K viewsNov 22, 2024
FacebookThe Kennedy Ladd Foundation, Inc.
1:08
01 Đâu PV LMHT GBVMH 26 MPS1
654 views2 months ago
YouTubeBao la lòng Chúa xót thương
0:15
Embracing Your Beauty as a Mother
17.1K views3 months ago
TikTokjenni_mps1
3:19
Delicious Sushi with My Two Beauties ❤️🍱
14.6K views4 months ago
TikTokjenni_mps1
0:22
Reasons for My Happiness after a Long Time
10.5K views4 months ago
TikTokjenni_mps1
4:34
Get Ready Together: Fun Moments and Tips!
8.5K views4 months ago
TikTokjenni_mps1
0:15
Insta(jenni_mps1)🤙 Business Outfit😂 #outfit #foryou #glücklichsein
7.7K views4 months ago
TikTokjenni_mps1
0:15
Insta(jenni_mps1)😍 Trend gemacht mit den schönsten Mädchen der Welt 😍 #fouryoupage #schönstesmädchen #foryou
7.3K views4 months ago
TikTokjenni_mps1
0:09
Insta(jenni_mps1)😂 Blödsinn mit Schatz machen😂 #seiduselbst #fouryoupage #boyfriend
7.5K views4 months ago
TikTokjenni_mps1
0:15
Exploring the Connection Between Sunshine and Mood
5.8K views4 months ago
TikTokjenni_mps1
See more
Static thumbnail place holder