Researchers expected counselors working with some populations to report barriers with SMA screening, but all counselors faced ...

In her debut column of "Caring Together," Connie Chandler reflects on her college days, when friends volunteered to help with ...

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry ...

Liver damage related to Zolgensma gene therapy usually resolves within a few months of treatment, a study found.

Following the launch of MDAS' Cybernics Treatment program, columnist Sherry Toh shares her hopes and concerns for the future of SMA.

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.

Columnist Halsey Blocher honors Val Kilmer, the late movie legend who offered a positive representation of living with a tracheostomy tube.

Nothing could've prepared columnist Helen Baldwin for her late son Jeffrey's diagnosis of SMA type 1 in the late 1990s.