When Keli Jones' son was diagnosed with sickle cell, she learned that parenting, if anything, means showing up, every day, ...

Guest writer Alexandria Smith shares how her life with sickle cell disease has become more empowering over the years, with ...

Hospital admissions can feel overwhelming when you live with sickle cell disease (SCD), regardless of where you receive care.

As a sickle cell warrior and advocate, I see September as our time to really shine! I advocate for sickle cell 365 days a ...

Advocacy groups across the U.S. are hosting events in September in recognition of Sickle Cell Awareness Month.

I’m grateful that my sickle cell care program is comprehensive and includes a therapist. I also have access to nurse ...

Genetix Biotherapeutics is teaming up with the National Football League Alumni Association for a campaign to increase awareness of one-time genetic treatments for sickle cell disease (SCD). “Despite ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Top-line data revealed olinciguat was well-tolerated across all doses tested, but the therapy’s ...

A new, interactive application touted as the first of its kind can help people with sickle cell disease (SCD) learn about and communicate with their care team about their pain attacks. People with ...

If you’re like me and have a good medical team, over time, you’ve likely grown attached to them. When you’re fortunate enough to have a competent and consistent team that genuinely cares about your ...

Note: This story was updated Dec. 12, 2023, to clarify that Lyfgenia treats vaso-occlusive events, including painful vaso-occlusive crises (VOCs). The U.S. Food and Drug Administration (FDA) has ...

The European Medicines Agency (EMA) has confirmed the continuing suspension of marketing authorization for Pfizer’s sickle cell disease (SCD) treatment Oxbryta (voxelotor) — withdrawn from the market ...