Spinal Muscular Atrophy

Jesy Nelson, Spinal Muscular Atrophy

Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters. “After the most grueling three, four months, and endless appointments, the girls have now been diagnosed with a severe muscular disease called SMA Type 1,” she shared in an emotional video.

· 5d · on MSN

Jesy Nelson Reveals 8-Month-Old Twin Daughters' 'Severe Muscular Disease' Diagnoses, Says They May Never Walk but 'Will Fight'

· 3d · on MSN

Wes Streeting supports Jesy Nelson’s call for improved spinal muscular atrophy screenings

5hon MSN

Doctors said I might not make my second birthday with muscle disease SMA. Now I'm 25

The BBC's Ben Morris describes living with spinal musclar atrophy, after Little Mix's Jessy Nelson spoke about it.

Medical Xpress

What you should know about spinal muscular atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It ...

The American Journal of Managed Care

Clinical Burden of Spinal Muscular Atrophy

A multidisciplinary panel of experts discusses the clinical burden of spinal muscular atrophy on patients, families, and caregivers and considers the importance of patient education and advocacy.

'I was completely ignored' over baby's rare spinal condition

Lucian Neale was diagnosed with Spinal Muscular Atrophy (SMA) at six weeks old despite showing symptoms in his mother's womb.

Jesy Nelson shares glimpse of her daughter using a feeding tube after revealing twins’ SMA battle

JESY Nelson melted hearts after she shared an adorable glimpse of her baby daughter using a feeding tube after revealing her ...

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