Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...

Tucker Langford knows there's going to be a parade on Saturday, but he doesn't know that it will be for him. This week, he came home from Children's Mercy for at-home hospice care, battling a rare ...

In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...

Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...

For the first time, doctors were able to treat a child who had a life-threatening rare genetic skin disease through a transplant of skin grown using genetically modified stem cells. For the first time ...

Thousands of people in Kansas City, Mo., showed up to cheer up a child with a rare and incurable disease 3-year-old Tucker Langford suffers from a painful condition known as “butterfly skin,” which ...

Tucker Langford, 3, has been diagnosed with a heart condition and placed on at home hospice care. He is seen with his mother, father and younger brother in this submitted photo. Provided by Chandler ...

This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On September 21, the Epidermolysis Bullosa Medical Research Foundation hosted its 7th annual event in Malibu, Calif., ...

When she was born, Emma’s parents were told she wouldn’t survive infancy yet, despite countless obstacles, aged 41, she is ...

Art has become an escape for a young North Texas girl living with a rare skin condition known as "butterfly skin," where even the lightest touch can cause pain. Through painting, 17-year-old Brianna ...

66% of those with lupus will develop some form of skin disease. In this episode of The Expert Series, Victoria Werth, MD will teach you about how lupus can affect the skin as she describes skin lupus ...