CHAPEL HILL, N.C. (WTVD) -- A father and mother in Chapel Hill are sharing their painful family story to raise awareness about a rare disease. It's a journey that began with unimaginable grief but led ...
June 9th is International Batten Disease Awareness Day. It's an opportunity for those dealing with this horrific, ultrarare condition to share stories, spread awareness, and maybe spur on much-needed ...
Researchers find that an easy-to-measure brain process may be a target or biomarker in measuring treatment outcomes in clinical trials in Batten disease. Early symptoms can be subtle. A child's ...
Early symptoms can be subtle. A child’s personality and behavior may change, and clumsiness or stumbling develops between the ages of five and ten. Over time, cognitive impairment sets in, seizures ...
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